Tuesday, January 18, 2011

Fix Me, Doctor, Please!

First neurologist appointment of the new year. And I'm having some anxiety about it. I feel like I am letting him down. Like he's doing his job, but my body isn't doing it's job. I should be better by now, but I'm not. Well, I guess I'm kind of better and kind of worse. To make things worse, I lost my migraine calendar. Lost it! How does that happen?! So since right after Christmas, I've been using Google Calendar to document my headaches and migraines. It works really well, but I'm missing a couple months of documentation. That makes me feel like a bad patient. On today's discussion agenda:

1. Since about the beginning of December, most days I have a non-migraine headache. Very intense, lasts all day long. Usually the back of my head right above my neck all the way to right about my ear. Advil, Tylenol, etc don't help them at all.

2. Triptans (I take Treximet and Imitrex Injections) work really well on the migraines I get during the day. They don't help with the migraines that I wake up with. I'm thinking its because I miss the beginning of the, because I'm asleep.

3. Urgent Care/ER recommends having some sort of rescue plan, something to try after the triptans don't work, before going somewhere.

4. I'm having sinus surgery hopefully sometime in February, I have chronic staph infection in my sphenoid sinuses, which could be contributing to sinus headaches that maybe flip to migraines.

I am hoping that this doesn't sound like I am seeking drugs, because I want to be high all the time, or because I want to be drugged up every day, because I don't. I just don't want to be in pain every single day of my life. I don't want to have to run up to the Urgent Care because my basic meds never had a chance to work. I don't want to worry all the time about my pain, will my meds work, will I end up having to go somewhere, where I'll worry they think I am faking, or treat me like a drug seeker. I don't want to have to spend more money (25-100 bucks a pop) every time I do have to go somewhere.

Maybe I'm too demanding.

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3 comments:

  1. Oh man, I am a regular headache/migraine sufferer too and I always have to dope myself up to make it through.

    I hope you find some answers!

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  2. I always hated the dull ache I would get between big migraines. I found it was either meds I was on, or foods I was eating which was a great relief for me. I hope you sort that out. Do you think it could be the treatments you're having for fertility? like hormone headaches all the time?

    Either way, I really hope you figure it out. You're not too demanding. Pain is the body's way of saying something isn't right, so fight for what you need!!!

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  3. I am also a sufferer. I have many many triggers and am looking at triptans but wondering whether to try a minute dose of aspirin every day as a preventative. It apparently works for some folks.
    These migraines are stopping me from working and the stress of an unsympathetic workplace is not helping. Ironically, stress is one of my triggers and I really don't want these episodes to lose me my job. Helps to know I'm not the only one....

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